Tuesday, June 14, 2011

The demonization of childhood ==For my "special readers" I return

Have you ever wanted to scream so loud, the whole world can hear you?
I have, and it's a pretty long story, so get ya a cuppa joe and sit down.
If it's after 12:00 noon where you live, I won't tell anybody if you grab a beer...

BUT, be ready to be deeply, deeply offended if you look to psychiatry to "save" your children.  If you do, remember...it ain't about you. Allow me to re-iterate...IT AIN'T ABOUT YOU...don't make me have to slap some sense into you. 

By God, I will....


I'm NOT cynical...I'm angry! Mostly at myself.  Learn from my mistakes, and save yourself the heartache

My neice is on Facebook. She's kinda bent out of shape, talking obliquely about her son and a mysterious "label". I send her a note.

"It's bi-polar, isn't it?"

"How did you know?"

"Because you're strong enough that I knew it had to be something scary to throw you off your game."

ADHD is for sissies. Autism, it's overdone...

Now bi-polar, there, ya got something. Numbers have gone up 4000% for children. Next thing ya know, it's gonna be "Bi-polar Speaks". Instead of a puzzle piece, it'll be a bicycle, or a bow-tie, or something. Two eyeballs going cross eyed.

And when that gets old, it will be something new. But, miraculously, there will be a drug for it.

Oh, no you didn' go there....

LISTEN; I KNOW THESE ARE SERIOUS DISEASES. There are people affected with them that probably belong in institutions, because at the present time we just don't have a clue of how to deal with serious mental diseases. Thorazine was supposed to clear out the mental wards as evidenced by this advertisement from a psychiatry magazine in the 1950's. In hindsight, we all know how that worked...


We can drug them into a stupor, but it doesn't change the crossed connections in their brains. My son's birth father was killed by a man undergoing a bi-polar episode. Don't YOU even go there. He may have even been on medication at the time, I don't know.

But we are placing these labels on a generation of children. For some sick bastards, "early intervention" means catching children early and bombing them with dangerous drugs. Professor Patrick D. McGorry, the "Australian of the year" is bought and paid for by the drug industry in Austrailia, and is fighting for early interventions so that kids can be drugged at younger and younger ages. If we don't wake up, that's where this is going.

What the hell is that going to do to baby brain cells? We don't know, because there are no long term studies. There are barely studies on children, whose make-up may be totally different from that of an adult, because it is in growth mode. It is unethical to blindly give children treatment in studies before the work has been done on animals, and it is very regulated. Yet, post acceptance by the FDA, drugs are giving indiscriminately (off label) and a LONG TERM study is one year, although the children may be given a drug for a lifetime for a non-life threatening condition.

It could be a tremendous mistake, you know? We don't know what we are doing.

The greatest "overcomer" of brain anomolies is inherit in the brains ability to change, it's plasticity Most of these kids are going to grow up and become contributing, possibly in outstanding ways, of society. Thomas Edison's mother was told he was "too scattered to learn" by a teacher, so she took him home and schooled him there.

Today? No doubt. Ritalin for Tommy.

There are no long term or studies of anti-psychotics, and none will be done because it is unethical to treat a child with something so serious in a study...but they will be given to children off label all over the world . Science, in all it's glory, doesn't have a clue as to why ritalin works. The "gold standard" of treatment for ADHD was a serendipitous finding in the 1930's. (Link to BMJ doesn't seem to be available at this time. Guttmann, E. & Sargant, W. (1937) Observations on Benzedrine. BMJ, 1, 1013 -1015). The safety studies usually consist of weeks, not months or God help us, life time use.

When my son was diagnosed with autism, I thought he was going to be severely retarded. I didn't know he would be gifted. I thought his behavior was so anomalous that he needed drugs to go to school. In the last 3 years of homeschool....NO RITALIN. In fact, he NEVER took it in the evening, weekends, holidays or summer vacation. He took it for 2 years before we ever saw him on it. We hated it that much.

And you thought Dr. Spock messed up us oldsters.

Pfffftttt....children's play.

LISTEN UP,PEOPLE....some kids are hard to raise. Really, really, really hard. You CAN drug them into compliance, and drug the creativity right out of them. (Listen to the TED talk below, you'll never see education the same way). You can turn them into zombies who will never know their gifts.

Ask my sister Sandy, who raised 3 ornery boys, before her easy daughter came. Nearly drove her up the wall. MAYBE, JUST MAYBE, it's the parents who need medication. She'd have enjoyed parenting a lot more, I'm sure. When I started medicating my son, in the ninety's, she told me that she could have chosen to medicate her children, but she chose not to. Today, they are all successful college graduates, living in fear that their own children will be just like them (every parent's effective curse upon their children).

When I graduated from college with a degree in the early '80's, a total of 6% of children were considered "special needs"--the Dyslexias, Minimal Brain Damage (the ADHD of it's day), Autism, Cerebral Palsy, Mental Retardation, Blindness, deafness...everything.

Now, it's 18% or more.They tend to skew the numbers for "No Child's Behind Left"...and thus bear the brunt of schools failure. Children who don't learn typically bear the brunt of schools failures...Do you hear what I'm saying? No wonder we drug 'em. Ben's teacher saw this coming in the beginning of NCLB 10 years ago. Why is it when a "school" fails to teach a child it is the childs fault, and not the schools. Sure it's hard...but we gotta blame somebody, so why not the kids? (the blame game, good reading! Second most important link here.) So parents/schools/administrators scramble to make "them", our tender-hearted kids, fit the mark. Therapy, special schooling, tutoring, research, quack medicine...it is a tremendously big business, and getting bigger. Everybody and their dog is making money off of "special needs" children in one way or another, or making money for Autism Speaks. Every time I go to a store and see that puzzle piece I want to puke. That's what good marketing will do for you. I'd put it here...but the Wrights tend to threaten to sue people who use their brand. So I'll use a stand in.

puzzle piece.

"autism squeaks, tee-hee." SCARY, huh?

And you know that study sponsored by Autism Speaks in Korea that assumed 1 out of 38 kids should be labled autistic. They went into the God-blessed schools, found suckers to take a test, and then "postulated" the assumed number who should be labeled, and then wondered why the parents fought them. Yeah...Wright!

mental madness

By the way, when I first started medicating my son at age 5 to go to school and stay out of special ed classrooms...babies as young as 6 months were being given medication for behavior. Why the hell would a 6 month old baby need to focus???? That was 12 years ago. I can't imagine what it is now. And this is not for serious, life-threatening disease, but to control "behavior", as defined by psychiatrists. They hold the power of labels over your children. Which is better, to be called a brat, or to be called an aspergerian and be considered mentally ill and be medicated or trained like an animal in "social behavior" ? (Do you know any of the stories of successful autists? Not one would give up their autism for 'social awareness' . Their autism is what made them successful. The word they used to be called was "gifted". You know, "scary smart"?)

Psychotic drugs for children
, as dangerous as they are, are the new "ice pick surgery". Do you know the inventor of the lobotomy got a Nobel Peace Prize for his work? Are we any smarter now??

And you know what the killer is? The DSM % (DSM 5, diagnostic and statistical manual of mental diseases,working on upping the numbers, replacing the DSM $, or DSM 4, self explanatory) is removing the truly autistic, kids with mental retardation, self-injury, movement disorders......and placing the moniker of autism solely on the backs of kids who have been making it for generations in the regular classroom. The geeks, the nerds, the dummies, the rummies...are now "mentally ill". Like they needed insult added to injury. What was once considered a learning difference, dyslexia , is now "caught early" as autism, in my son's case. I'm so pissed I can't see straight. (Maybe I'm bipolar...)

Yeah, I know, it's a serious mental disorder...but when 15% of boys are on medication, with numbers increasing every year, it's beginning to feel a lot like a witch hunt.



Sure, I'm being emotional. But lookie (or listen) here to one of the doctors (Dr. Allen Frances, God bless 'em) responsible for the diagnosis of bi-polar in the DSM 4. Also, listen to how the mother totally ignores his plea that too many kids are being medicated for being difficult to raise. He's being very, very reasonable in my book. I don't see that much among scientists (cough, cough, BC, cough). Fear of mental illness does not lead to good parenting.

Look here, at a scientologists son who was labeled with "undiagnosed autism" after his death, John Tavolta's son Jett. Notice, he did not die of autism. He died of a SEIZURE. Although autism and seizures are frequently intertwined, autism is diagnosed by BEHAVIORS. Other than genetic maladaptions of the brain that cause those behaviors like Fragile X, Neurofibramatosis, Tuberous Sclerosis, or poisoning in utero by the drug used for epilepsy known as valproic acid , or by a virus, the mother's contraction of Rubella while pregnant....there is a whole lot of diagnosis going on that is "shadow syndromes" that make a lot of people a lot of money.
Shadow Syndromes ~Delusion paranoid schizophrenic with an attendant persecution complex = Jesus of Nazareth

learning disability

America's schools, these great bastians of learning, insist on things being made easier for them to not teach our children by drugging greater and greater numbers, instead of doing the hard work of teaching that was done in the past, that kept us up at #1. You have to wonder if we aren't drugging some of our greatest minds. Genius and "mental disorders" go hand in hand. Seems you can't have one without the other. In the past, some parents created special schools for their children who learned differently. Now, many, many parents pull their kids out of public education and HOMESCHOOL to avoid a lifetime label or drugging.

Karma is a bitch for the schools, isn't it?

The most important link you could hit today is right above you. Forget all the rest of this crap!

Autism Prevalance

Look at this. This is where I started to wake up. What do you think causes Autism? Doesn't it look like CAPITALISM???

I mean, you don't have to be a rocket scientist. You can't make this shit up. My son was labeled autistic when he was 3 years old. The ONLY expert I listened to was Temple Grandin. She led me much more lovingly through trecherous waters than the psychiatrists Ben had. Except for the one who was ADHD himself. He used to tell my son he was the hardest worker he knew. And school is very, very hard for our kids who think differently, who think right-brained, visuallly, as some describe it. These Hunters in a Farmers world.

grandin [[Temple Grandin (famous autist) says that the rocket science division at NASA is a "sheltered workshop for the socially impaired".]]

Anybody that doesn't recommend this shall be cursed (or "blessed" :))with a difficult child. I ain't messing around here, people.

I know y'all hate Dr. what's his butt of Focus on the Family. But he said one thing that I've never forgotten. I guess even fools can speak great wisdom.

"If your kid is driving you crazy, that's their job. Some kids are just really, really good at their jobs"

Get a life, get a sense of humor, give your kid a break.

If things don't work out at school, as seems to be the case for more and more children...homeschool. Or suck it up until age 16 and get a GED or go to Tech...my son is doing that without a GED or high school diploma. We don't teach to kids who learn hands on. We teach to the science/math majors and fail the rest. Look at these 15 successful people who were labelled "learning disabled". Seems they may have been "school disabled" because they did pretty damn well for themselves. They made the cut because of who they are, not in spite of it.

Saturday, May 14, 2011

I've got a new home.

All two of you that read me.

To Autismo:


and to who ever believed in me at dot com for moms....God bless you!

Wednesday, May 11, 2011

Goodbye, cruel world

Rosabw has disappeared.  I am now ragette at blogspot dot com.

Tuesday, May 10, 2011

Numbers never lie....



Autism rates increase.....wwwoooooooooo.....ONE IN THIRTY EIGHT O MY GOD!!!!!!!!!
It's all the rage in the "Autism Files" (TM)
Read all about it...

Autism: 1 in 4…Give it, ah, about…Well, hell…anyone a mathmatician around here? What was it, 4 in 10,000 about 20 years ago? As it becomes more lucrative, it becomes more common;

Let’s see… 1 out of 38 = .026

4 out of 10,000 = .0004

That an increase of 6500%

The stock market went from about 3,000 in that time, to about 12,000 today. That’s only an increase of 400%

(Edited to delete smart-ass comments)

Now…to figure out how long from 1 in 38 to one in 4…

6500% increase in 20 years is 325% a year.

God, this is getting hard…

4 is 9.5% of 38…..It would have to increase about 10 fold, or 1000%

Let’s see…1000 is to x as 6500 is to 20

6500x = 20000… lets see…ABOUT THREE YEARS!!!

It’s math, people. The universal language. AND BY THIS UNIVERSAL LANGUAGE< I figure this is STUPID!!!!!!!

The State of Psychiatry, 1956


Side Effects of Thorazine - for the Consumer


All medicines may cause side effects, but many people have no, or minor, side effects. Check with your doctor if any of these most COMMON side effects persist or become bothersome when using Thorazine:

Blurred vision; constipation; dizziness; drowsiness; dry mouth; light sensitivity; nasal congestion.

Seek medical attention right away if any of these SEVERE side effects occur when using Thorazine:

Severe allergic reactions (rash; hives; itching; difficulty breathing; tightness in the chest or throat; swelling of the mouth, face, lips, or tongue); changes in breasts; changes in menstrual period; changes in vision; chest pain; chills; confusion; difficulty swallowing; difficulty urinating; drooling; extreme tiredness; fever; inability to move eyes; involuntary movements of the face, mouth, tongue, or jaw; jitteriness; lip smacking or puckering; mask-like face; muscle spasms of the face, neck, or back; prolonged or painful erection; puffing of cheeks; rigid muscles; seizures; shuffling walk; skin discoloration; sleeplessness; sore throat; stiff arms or legs; tremors of hands; twitching or twisting movements; weakness of arms or legs; yellowing of the skin or eyes.

This is not a complete list of all side effects that may occur. If you have questions about side effects, contact your health care provider. Call your doctor for medical advice about side effects. To report side effects to the appropriate agency, please read the Guide to Reporting Problems to FDA.

Thanks for looking

The Village Idiot

Monday, May 09, 2011

Been there, done that


See this guy?  I know of him from my trips to a big blog.  He's really funny and kind.  His mom started a school for him, and kids like him, that still is in operation.  He is a statistician. He has his doctorate.  He is married, and has 2 children.(I'm pretty sure 2 kids.)  He has a Non-verbal Learning Disability. He has a son who also has some troubles.

Now, I don't mind labels when they don't imply mental illness.   Ben is Dyscalculia, and Dysgraphic, which makes it hard for him to memorize his math tables and write.  He is not just being lazy.  Weird, but he is gifted in math.  Go figure.  He has Dyspraxia, which makes it hard to use all his muscles together...he's kinda clumsy, like his mama.  I don't mind people giving reasons why some things are extra hard for them.  You teach a child the way they learn.  If the public school doesn't do it, you do it at home.  Your kid might grow up to be a doctor, like Peter, but he's got to have a base to grow on.

Peter wrote quite a good story about his differences, his "disabilities".  He also will go on (at length) about his abilities. (I kid.) I don't mean to be unkind, but if you've made it this far, you dang well better click on this link and read his story.   http://www.associatedcontent.com/article/2333808/abled_and_disabled.html?cat=72

Interesting, huh?  Abled and disabled.  Both---not just disabled.

That's the way I feel about my son.  He has "issues" beyond his control that are gonna make it a little bit harder for him to make it.  But he will make it.  I have no doubt.  I believe in him.  Besides, he reminds me so much of an old friend who used to have so much trouble in school...repeated 2 grades.  Never went to college.  A millionaire. 

It could happen.

I'm sure when Peter went to public school in his younger years he was seen as disabled.  Only.  I guess they couldn't teach him the way he learned.

Teachers are the next best thing to mothers. But mama's know their children.

Sunday, May 08, 2011

Trololo Sing Along, with SUBTITLES!!!!

If I've had to listen to this every damn day for the past 2 weeks, well,

I thought of you, codester, if you're "listening".

Hey, y''all--Michelle D. in Atlanta!!!

If you live in or near Atlanta

Atlanta Autism Consortium (AAC)Upcoming MeetingsPast MeetignsPresentations/VideosAbout AACMembers DetailsMailing ListHomeJune 2011 AAC meeting

Wed, 04/13/2011 - 09:38 — agoursa

Start: 06/09/2011 5:30 pm

End: 06/10/2011 4:00 pm

Timezone: US/Eastern

Topics: Exploring the brain of autistic individuals & Intervention research in Autism.


Thursday, June 9th, 5:30 – 8 pm;

AAC monthly meeting PART 1– Michelle Dawson: “Why is this brain autistic? Exploring Cognitive Versatility in Autism”

Friday, June 10th, 2:00 - 4:00 pm

AAC monthly meeting PART 2– Michelle Dawson: “Autism Intervention Research: Good and Bad News”

Location: Marcus Autism Center, Second floor Conference room.

-> Featured speaker:

Michelle Dawson,

Affiliate Researcher

Clinique Specialisée de l’Autisme

Hôpital Rivière-des-Prairies

Université de Montréal

-> Biography

Michelle Dawson is an autistic researcher affiliated since 2004 with Laurent Mottron’s lab at the University of Montreal. Her research interests include learning and intelligence in autism, the autistic cognitive phenotype, how cognitive processes work together in autism, and science- and ethics-based approaches to autism.

-> Thursday June 9th (5:30 - 8:00 pm): Why is this brain autistic? Exploring cognitive versatility in autism

“We do not know very much about autism and autistic people,” wrote a famous scientist back in 2004, and things have not improved much since then. If sheer quantity of scientists, scientific research, scholarly books, and so on, was in itself effective, then our ignorance about autism would have vanished long ago. But this is not what has happened. Deficit-based accounts of autism have always been dominant, and these models have certainly been both powerful and popular. But they have also fallen short where it counts: they have not made good predictions about the abilities of autistic people. Meanwhile, autistic cognitive strengths have been either ignored altogether or promoted as evidence for yet more autistic deficits. In the circumstances, perhaps no one should be surprised that autism remains poorly understood. How and why did this happen, and how can we do better?

-> Thursday June 10th (2:00 - 4:00 pm): Autism intervention research: Good and bad news

The quality of autism intervention research has an enormous impact on the daily lives of all autistic people, whether we do or do not receive any specific kind of intervention. At the same time, well-established research standards that have greatly enhanced the well-being of nonautistics are routinely denied to autistics. For example, good experimental design in autism intervention research is often claimed to be impossible as well as harmful to autistics; and quantity of research is often promoted as definitive, regardless of quality. This presentation will explore these and many related issues, identifying current trends, providing examples, and enumerating the consequences of good and poor quality autism intervention research.




One stop money laundering center for parents of  "autistic" children. From your pockets to ours!!!

Oh, please people...your child is fine!  Unconditional love will help much, much more than any of this.

They are not monsters.  They are not mentally ill.  They are not socially inept (they just have to find their own birds, and when you are 1 in 100, it's kind of hard to do.  Go to wrong planet.  There's LOTS of kids like them there.  Or go to You tube and show them Monty Python for social skills.

This guy has been known to lead the downfall of the Soviet Union AND cure autism....for FREE

Or you can laugh.  True laughter can only be shared.  And "auties" have great, great senses of humor when they feel comfortable.  \

They are absurdists....a new form of humanity brought about from watching  too much television and going to psychiatrists.

Comic Relief:

Ben says this song alone is responsible for the fall of the Soviet Union.

Saturday, May 07, 2011

Blame for Pertussdis deaths, according to AMA

It's those damn irrational parents...or...maybe it's the doctors who are afraid they won't be paid.

Why do doctors want children to die?? The American Medical Associations blames parents, and then spanks some of their naughtier members.  It could be either, but let's go with the parents, first.  Maybe nobody will notice....(and nobody did!!)

If you can't afford an immunization...well...


What it all boils down to...


Where rationalism can fail

Being right can seriously fail to charm people, and therefore to convince them. (Or to phrase it another way, when dealing with people, ethos and pathos are more useful than logos.)

You can gain negative charisma and really piss people off.

It's less likely to get you laid than carefully-applied stupidity.

Rationalist jokes by rationalists


Thursday, May 05, 2011

You Belong to Us Now....Bwwwaaaahhhhhhahahahahahah!!


God dang psych's going door to door for business.

We're autistic?  Oh? Well, now....Let me call me mum and tell her the good news!!!

No shit?

What a difference 8 years makes.


Curr Opin Pediatr. 2003 Jun;15(3):339-43.

How common are gastrointestinal disorders in children with autism?

Kuddo T, Nelson KB.

SourceNeuroepidemiology Branch, National Institute of Neurological Disorders and Stroke, Bethesda, Maryland 20892, USA.


We could identify no report that describes the prevalence of gastrointestinal disorders in a representative group of children with a diagnosis of autism compared with appropriate controls. Thus, we found no evidence upon which to base a confident conclusion as to whether gastrointestinal symptoms are more common in children with than without autism. However, the frequency of gastrointestinal symptoms observed in population-based samples of autistic children indicate that gastrointestinal problems are not nearly as common in children with autism as reports from pediatric gastroenterology clinics suggest.

BMC Gastroenterol. 2011; 11: 22.

Published online 2011 March 16. doi: 10.1186/1471-230X-11-22. PMCID: PMC3072352

Copyright ©2011 Adams et al; licensee BioMed Central Ltd.

Gastrointestinal flora and gastrointestinal status in children with autism -- comparisons to typical children and correlation with autism severity

James B Adams,1 Leah J Johansen,1 Linda D Powell,1 David Quig,2 and Robert A Rubin3


The strong correlation of gastrointestinal symptoms with autism severity indicates that children with more severe autism are likely to have more severe gastrointestinal symptoms and vice versa. It is possible that autism symptoms are exacerbated or even partially due to the underlying gastrointestinal problems. The low level of SCFA's was partly associated with increased probiotic use, and probably partly due to either lower production (less sacchrolytic fermentation by beneficial bacteria and/or lower intake of soluble fiber) and/or greater absorption into the body (due to longer transit time and/or increased gut permeability).
Looking for cures?  So is "medicine".  Because they have no answers, I guess they are taking another look  at what is considered crazy parents ideas.  Can't come up with any new ones of their own.


Postdoctoral Research Scientist

Columbia University

Summary Description: The Department of Medicine at Columbia University, Division of Digestive and Liver Disease seek highly motivated Post-doctoral Research Scientist. Candidates will conduct translational research to investigate immune mechanisms in neuropsychiatric and developmental disorders. Specific areas of focus include celiac disease/gluten sensitivity, schizophrenia, autism, and ADHD. Demonstrable experience in protein purification and analysis, cell culture, small animal surgery, microarray work, and immunology and molecular biology techniques will be desired. The laboratory is located on the medical campus of Columbia University in New York City, and has on-going collaborations on a number of exciting projects with investigators at the National Institute of Health, Cornell University and Johns Hopkins University..

Minimum Qualifications: Degree in immunology, cell biology, neuroscience or related field. Experience in basic biostatistical analysis, outstanding record of independent and collaborative research; exceptional motivation and a strong desire for a career in biomedical research; and excellent written and verbal communication skills.

Child abuse by any other name: research-based intervention protocols...sounds like ABA 

Kennedy-Kreiger Institute of Baltimore, Maryland needs:

JOB ID 60183

This Research Assistant I will implement research-based intervention protocols for children with autism spectrum disorders. Will implement research protocols in classrooms (1:1 contexts), homes, and lab, as well as prepare teaching materials, provide communication and training to parents, collect data on the research participants' progress and intervention responses, enter and code data, archive data, and assist with other research related activities. The Research Assistant I will have experience working with young children with autism.


Under the direction of the Research Coordinator and other senior research staff, implement the research treatment protocols with parents and children with a high level of fidelity.

Collect data on children's and parents' response to intervention.

Code and score assessment and intervention data.

Maintain high levels of inter-rater reliability on all coding protocols

Archive and enter data.

Create therapeutic materials.

Set up and break down intervention settings.

Prepare video clips to illustrate intervention, developmental, and diagnostically relevant aspects of behavior.

Consent families into the research studies using IRB approved procedures.

Videotape research assessment and intervention sessions.

Attend research meetings.



Must have some college classes in psychology, education, or related field. Bachelor's degree preferred.

EXPERIENCE:What, no degree??

Must have experience with young children with autism and implementation of treatment protocols.


Must have at least one year experience providing supervised evidence-based intervention to preschoolers with autism spectrum disorders .

Oh, God, not the mice again....
Research Technologist

Johns Hopkins University

General Description:

The focus of the research of the Laboratory of Molecular and Cellular Neuroscience is to elucidate the molecular basis of communication between neurons in the adult mammalian brain, and explore implications in neurological and psychiatric disorders including Autism and Alzheimer's disease.

Will contribute to the research in the field of synaptic plasticity. Will perform a variety of techniques including molecular/cellular biology and biochemistry (western blotting, immunohistochemistry, PCR) and behavioral experiments focused on the novel exploration paradigm. Will be responsible for maintaining transgenic mouse lines (breeding, genotyping, colony maintenance) relevant to these studies. Capable of working independently, ability to multitask and must have good communication skills. Qualifications:

Bachelor?s degree in biology, chemistry, or related field required. Some related post-undergraduate work experience preferred.

Experience with general lab techniques, computer skills, and willingness to work with mice required. Experience with mouse handling/colony maintenance a plus.
Staff Scientist I

Company Name:

Kaiser Permanente

Job Title:

Staff Scientist I

Note yellow underlined:  You work for US, baby....

Job Code:



Oakland, California

Job Description:At Kaiser Permanente Northern California, you'll join a team of health advocates who share your passion for helping people. From our laboratory professionals to our RNs to our physical therapists-and everyone in between-we work together to help our members achieve their best level of wellness. And you'll be inspired to do the same. Whether you dream of sailing the bay, hitting the slopes, hiking Yosemite, attending the opera, or strolling the vineyards, you'll discover the cultural and recreational diversity that makes Northern California one of the most desirable places in the world to live and work. Northern California's largest health plan, Kaiser Permanente provides you with the resources, scope, and opportunity you need to realize your goals. Come see for yourself.

The Kaiser Permanente Division of Research invites applications for a full-time, limited term Staff Scientist position to join a vibrant research team focused on identifying genetic and environmental risk factors for autism spectrum disorders, and understanding patterns of detection, diagnosis, and utilization of health services for ASD. The Staff Scientist will work in collaboration with Dr. Lisa Croen, Sr. Research Scientist and Director of the Autism Research Program. The staff scientist will be expected to analyze data, write papers, prepare grant proposals and help coordinate a variety of studies conducted by the Autism Research Program. We seek applications from persons with a PhD in epidemiology, health services or related field. Preference will be given to applicants with strong analytic and writing skills and a demonstrated ability to write successful grant proposals and publish papers. Knowledge of children with autism or other psychiatric/developmental disabilities is preferred but not required. The position is funded through multiple grants for a minimum of 2 years.

Essential Functions:

* Designs, develops, & directs well-defined research w/ minimal supervision from the DOR Research Scientist II or III

* Prepares grant proposals, internal reports & publications independently & collaboratively

* Provides consultation & directs study design, analysis plans & interpretation of study results to TPMG, KFH/P managers & committees as discussed w/ DOR Research Scientist

* May consult w/ local, state, & national voluntary & governmental agencies, or w/ scientists at other institutions

* Provides consultation & direction to programmer analysts w/ regard to data management & analysis strategies

* Presents papers at national scientific meetings; teaches &/or reviews papers for national journals

* Seeks consultation from senior scientists for specific scientific & administrative issues

Other Duties: As part of a larger collaborative team, and under the supervision of Dr. Croen, the Staff Scientist will,

* Take leadership for a major component of a research project

* Assist with project management, including oversight of staff

* Analyze data from a range of sources using appropriate statistical techniques, using SAS and other statistical packages

* Contribute to and draft scientific manuscripts for publication

* Liaise with stakeholders and other experts in the field to ensure validity and applicability of research findings

* Facilitate the uptake of research findings by assisting in presenting research results to key audiences and developing materials that support the translation of the findings into practical outcomes

* Contribute to and develop new research grant proposals

Basic Qualifications:

* Doctoral degree (Ph.D., Dr.PH, MD, Sc.D) in epidemiology, health services research, economics or related field or equivalent training & mastery

* Highly competent in the statistical techniques, study designs & general research methods commonly used in epidemiological & health services research

* Able to lead a research team, w/ mentoring from DOR Research Scientist II or III & to directly supervise designated team members such as data analysts or research associates or project managers

* Must be able to work in a Labor/Management Partnership environment

Preferred Qualifications:

* Advanced research training

* Experience with statistical methods appropriate for epidemiological studies

* Strong set of analytic and problem-solving skills

* Broad understanding of epidemiological concepts

* Effective communication both verbal and in writing

* Demonstrated ability to work in a collaborative team

* Experience with project management

The successful applicant will have opportunities to further develop her/his epidemiological and analytic skills in an environment supported by an internationally recognized senior scientist working in a unique institutional setting like KP.

++ NOTE: This position is expected to continue for 2 years work or pending continuation of grant/contract funding ++ General Information Job Category:Pharmaceutical
Grant-writing....hmmm....who is paying for this?
Reiterating:  bowel immunity...food allergies??  Feingold was full of it, remember??

Postdoctoral Research Scientist

Columbia University

Summary Description: The Department of Medicine at Columbia University, Division of Digestive and Liver Disease seek highly motivated Post-doctoral Research Scientist. Candidates will conduct translational research to investigate immune mechanisms in neuropsychiatric and developmental disorders. Specific areas of focus include celiac disease/gluten sensitivity, schizophrenia, autism, and ADHD. Demonstrable experience in protein purification and analysis, cell culture, small animal surgery, microarray work, and immunology and molecular biology techniques will be desired. The laboratory is located on the medical campus of Columbia University in New York City, and has on-going collaborations on a number of exciting projects with investigators at the National Institute of Health, Cornell University and Johns Hopkins University..

Minimum Qualifications: Degree in immunology, cell biology, neuroscience or related field. Experience in basic biostatistical analysis, outstanding record of independent and collaborative research; exceptional motivation and a strong desire for a career in biomedical research; and excellent written and verbal communication skills.

Preferred Qualifications:

As a member of the National Collegiate Athletic Association (NCAA) and the Council of Ivy Group Presidents (Ivy League), it is imperative that members of the Columbia University community, in all matters related to the intercollegiate athletics program, exhibit the highest professional standards and ethical behavior with regard to adherence to NCAA, Conference, University, and Department of Intercollegiate Athletics and Physical Education rules and regulations.

Columbia University is an Equal Opportunity/Affirmative Action employer.
ONCE AGAIN: autism, the NEW cash cow!!!
Aren't epidemiological studies the CDC's job?
Company Name:

Kaiser Permanente

Job Title:

Sr. Consulting Data Analyst / Data Consultant

Job Code:



Oakland, California

Job Description:At Kaiser Permanente Northern California, you'll join a team of health advocates who share your passion for helping people. From our financial professionals and IT team members to our RNs and physicians on the front line of care-we work together to help our members achieve their best level of wellness. And you'll be inspired to do the same. Whether you dream of sailing the bay, hitting the slopes in the Sierras, hiking Yosemite, attending the opera, or strolling the vineyards, you'll discover the cultural and recreational diversity that makes Northern California one of the most desirable places in the world to live and work. Northern California's largest health plan, Kaiser Permanente provides you with the resources, scope, and opportunity you need to realize your goals. Come see for yourself. Hard sell...

Under general supervision, this position exists to assist the organization in making strategic data-related decisions by analyzing, manipulating, tracking, internally managing, and reporting data. This position functions both as a senior analyst and as a high-level statistical analytics programmer.

Essential Functions:

* Designs and enhances databases (mmh...mmmmmhhh....pffffttttttt....LOL!)

* Designs effective and user-friendly menu systems

* Develops accurate, easy to read, & useful information reports

* Designs and generates tracking and monitoring tools

* Participates in the development of outcomes and process measures, including technical specifications to enable population measurement, guideline implementation, and evaluation

* Tests complex statistical routines using macros, vendor software, and software written by self and others

* Tests and maintains data integrity

* May assist with sophisticated (i.e.,not easily deciphered) statistical models and forecasting tools (Forward looking statements to rein in investors....) using these databases

* Assists with the definition of complex multi-dimensional healthcare issues and develops time tables/processes for decision making

* May translate needs, issues, and ideas into effective strategies and action plans

* May formulate specific implementation plans and evaluates the effectiveness of actions/programs implemented.

* Develops creative alternative solutions (does that mean, "lies", because when my son get's "creative"....)

* May assist in the determination of goals and priorities with team, clients, or project management sponsors (must know who is buttering their bread........)

* May communicate results/recommendations to project sponsors, clients, and various senior level audiences (including physicians for TPMG departments)

Acronym Definition

TPMG The Permanente Medical Group

TPMG Tout pour Ma Gueule (band)

TPMG Tidewater Physicians Multispecialty Group

TPMG Toronto Photography Meetup Group (Canada)

TPMG The Provost Marshal General

TPMG Test Platform Management Group

Basic Qualifications:

* 3 years programming in SAS, SQL, VBA, net, or equivalent statistical analytical programming language

* Experience with analytical manipulation and interpretation of large databases required

* Experience with MVS/TSO operating systems preferred; if not, experience with another mainframe operating system required

* Project management experience preferred.

* Typically, 2+ years of related analytical, consulting, & healthcare experience preferred

* Bachelor of Arts degree in Economics, Finance, Health Care Administration, Public Health Administration, Statistics, Mathematics, Operations Research, or related field required, or equivalent work experience in lieu of a degree

* Master's degree preferred

* Broad familiarity with medical practices, especially population management and process and outcomes measurement

* Knowledge of JCL strongly preferred

* Ability to express complex analytical and technical information to senior management or to audiences with clinical training

* Strong analytic and critical thinking skills, writing skills, communication skills, consulting skills, and ability to work within a team

* Microsoft Office skills required

* Must be an independent self-starter

* Must be able to work in a Labor/Management Partnership environment

Expected length of employment

This position is expected to continue for _1____ years work or pending continuation of grant/contract funding.

Other Duties :

*Analytical programmer to provide statistical analysis, programming, and data management support for autism epidemiologic studies.

*As part of an autism research team, the programmer will develop and maintain moderate to very large sized research databases for use in data analysis and tracking; perform data cleaning and editing of data files; conduct descriptive data summaries and multivariate analyses; prepare graphic presentations of data; maintain detailed documentation of programming, data sets, and analyses; and contribute to preparation of reports, presentations and publications.

Preferred Qualifications/Experience :

* Experience with statistical approaches to analysis and interpretation of large databases appropriate for epidemiological studies.

*At least one to three years experience with statistical programming in SAS; experience with SQL, macros, AF, SASGRAPH, and PROC Report.

*Experience with MVS/TSO operating systems; and/or equivalent experience with another mainframe operating system.

*Knowledge of Microsoft Office.

*Strong analytic and critical thinking skills, writing skills, communication skills, consulting skills, and ability to work within a team.

*Ability to express complex analytical and technical information to senior management or to audiences with clinical training. Must be an independent self-starter.

*Knowledge of JCL strongly preferred.

*Two or more years of related analytical consulting experience, preferably with healthcare experience.

*Experience with perinatal and/or autism studies a plus.
Even Uta Frith says they're barking up the wrong alley here:
Career Opportunities at Mount SinaiReturn to the Mount Sinai Main Site

Return to the School of Medicine Welcome Find Jobs Sign In Job Detail

To apply for this Postdoctoral Fellow, 859 - Psychiatry, PD11-1294706 position, click on Apply for this position.

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Job Title: Postdoctoral Fellow

Full/Part Time: Full Time

Location/Affiliates: Mount Sinai Medical Center (Manhattan)

Department: 859 - Psychiatry

Requisition Number: PD11-1294706

Job Description:

As part of a dynamic neuropsychiatric genetics group that is actively searching for the genetic causes of schizophrenia, bipolar disorder, and autism; The successful candidate will have experience in biostatistical analyses and analyze genetic data derived from multiple internal and external studies. Ideally this candidate will interact with the PI to determine and execute a data analysis plan for studies involving genome wide SNPs, copy number variation, or next generation sequencing. We seek a highly motivated and dedicated M.D. or Ph.D. in genetics, bioinformatics or statistical genetics with excellent quantitative skills, proven ability to work well in a collaborative environment, The successful applicant will have strong training in statistics or biostatistics, data mining, and genetic analysis as well as experience with database management and computer programming

Job Qualifications:

Genetics, Biology, Computer Science or related topic

2 years in research enviroment

Strong communication and writing skills.


So there you have it.  My cynicism knows no bounds.  A skeptic's skeptic, that I am.....

Sunday, May 01, 2011

Drink to me, drink to my health!!

If you are looking for any excuse, join me, join my son this day or any day.  THIS is autism, mellow and contrite, as many tend to see it..  This is not how parents of children who literally have no voice see it.  Grow up, little auties, and learn to love even those you do not understand.  You ask as much of them, now ask as much of yourselves.  You are not Autism Every Day.  You are autism on the weekends and every third Thursday of the month.

Sunday, April 24, 2011

Dear Mary:

jDear Mary _Flashlight:

Something you said put a nickle in my nickelodean, so to speak....It got to be so long, I decided to make a new post of it.  I will try to get back to your blog, if you have one, and read up on your situation so I don't end up asking a lot of unnecessary questions.

I'm just putting it out there. I don't necessarily believe it, in our case, either. I think it's probably a little environmental (Our family is made up of "little professors")AND genetic (I'm guessing his birth father was learning disabled, as in, not public school material---teaching disabled) AND possibly an inherited maladption to food/environment/whatever, because of the preponderance of epilepsy in people with autistic personalities. I say personalities because, for the most part, it is behaviorally diagnosed. Excepting Tuberous Sclerosis, Neurofibromatosis, Fragile X, neurological manifestations of the mother's Rubella illness while pregnant (which, thankfully, we don't see much anymore), and drug interactions with the fetus's development, as in valproic acid...we have no idea of the reason. The only thing we are “pretty sure” of is Bettleheim was wrong. That last one? It's mostly the mothers who believe that with all their hearts. Society, well, hasn't exactly caught up.

Interesting that the study seemed to be about the addition of DHA and AA, and lack there of,not breastfeeding necessarily.

What I do believe with all my heart, is that some forms of Autism may be totally diet related, and not in "poisoning" except perhaps by a genetic inability to process, say, amino acids like in PKU. Nature poisons those kiddo's. I had a friend whose husband was unable to remove iron from his body. He was slowly poisoned by iron andit led to much suffering and an early death. His children have been tested and can treat the disease with that knowledge, and not suffer as their dad did.

We are fearfully and wonderfully made, but there are as many maladaptions as there are people. We just don't know it yet.

But, Mary...I'm LUCKY. Ben is so mildly 'touched' it isn't even funny. I didn't know that when he was a kid.

I am thinking of kids who undergo regression. At about age 18 months. What changes????

It could be diet as it changes about then and kids eat Western food. I am SO allergic to Red dye 40 it isn't funny( I break out in hives. My eyeballs itch as we speak, as I accidently got some yesterday)...but it's put in everything, including hot dogs, apples...to make them more appealing...nasty! I've gotten to where I can recognize an unnatural color in salad dressings, check the label, and there's the culprit.

There could be an item in formula which is untolerable to some children, which slowly builds up. It isn't nature made. There could be a genetically maladaptive response to any food, as in PKU. It could be a natural personality trait, in the event of mild Autism, like my son....but I”ll be damned if I knew that when he was 3 years old. It was indistinguishable from any other type of autism, in my mind.

I guess I am not of a notion that severe autism and mild autism have anything in common but a similar developmental trajectory....so similar, in fact, that they are somewhat indistinguishable. Like a Neurotypical child, you don't call one with a profoundly low IQ severely neurotypical or severely normal.

Diarrhea of the brain...I'm sorry.

What are the specifics of your child? What age is he? Do you know whether he is mildly, moderately or severely afflicted? What do you believe was so extraordinarilly different about your child that IF your could bring it up to a scientist who would magically listen without judging...what would it be?

You know what mine would be? Recently, I've read that science has decided that fever/chills/puss whatever are the bodies response to bacteria/viral loads. That high temps and flowing mucous are a sign of an ACTIVE IMMUNE SYSTEM, not an inactive one. The child who never has a fever, than, has a poor immune system.

In Ben's first year, he NEVER had a temperature. Never. Except for the time I overdressed him for church and he heated up while waiting to get out to the car. I wish I could see a study of how some kids got better when they had fevers, when their immune system was in high gear...and how it relates to a possible low grade inflammation of the body system.

Like THAT's gonna happen. Science could give a fat rat's ass what I think. They didn't even notice our kids until it became lucrative (monetarily, prestigiously, whatever...), and the woo-ers were getting in on too much of the action. Bastards...

I guess it needed to be said. Sorry about the verbal blast.

Saturday, April 23, 2011

Mhh-mhh-mhhn....Makes ya wonder...Is it in the milk???

Is it infant formula that  causes autism, or is it something in the breast milk that fights the weakening of the immune system.?



Although Autistic Disorder is associated with several congenital conditions, the cause for most cases is unknown. The present study was undertaken to determine whether breastfeeding or the use of infant formula supplemented with docosahexaenoic acid and arachidonic acid is associated with Autistic Disorder. The hypothesis is that breastfeeding and use of infant formula supplemented with docosahexaenoic acid/arachidonic acid are protective for Autistic Disorder.Methods

This is a case-control study using data from the Autism Internet Research Survey, an online parental survey conducted from February to April 2005 with results for 861 children with Autistic Disorder and 123 control children. The analyses were performed using logistic regression.Results

Absence of breastfeeding when compared to breastfeeding for more than six months was significantly associated with an increase in the odds of having autistic disorder when all cases were considered (OR 2.48, 95% CI 1.42, 4.35) and after limiting cases to children with regression in development (OR 1.95, 95% CI 1.01, 3.78). Use of infant formula without docosahexaenoic acid and arachidonic acid supplementation versus exclusive breastfeeding was associated with a significant increase in the odds of autistic disorder when all cases were considered (OR 4.41, 95% CI 1.24, 15.7) and after limiting cases to children with regression in development (OR 12.96, 95% CI 1.27, 132).Conclusion

The results of this preliminary study indicate that children who were not breastfed or were fed infant formula without docosahexaenoic acid/arachidonic acid supplementation were significantly more likely to have autistic disorder.
Lipid Res. 2007 Mar;48(3):513-7. Epub 2006 Dec 21.

Docosahexaenoic acid and arachidonic acid are fundamental supplements for the induction of neuronal differentiation.

Kan I, Melamed E, Offen D, Green P.

SourceLaboratory of Neurosciences, Felsenstein Medical Research Center, Beilinson Campus, Sackler School of Medicine, Tel Aviv University, Petah Tiqwa 49100, Israel.


Cell replacement therapy is being investigated for the treatment of neurodegenerative disorders. Adult autologous bone marrow-derived mesenchymal stem cells (MSCs) have been induced to differentiate into neuron-like cells harboring a variety of neuronal markers and transcription factors. Neural tissue characteristically contains high proportions of docosahexaenoic acid (DHA) and arachidonic acid (AA). In this study, evaluation of the fatty acid profile of differentiated neuron-like cells revealed a very low level of DHA, similar to that in MSCs but different from typical neurons. Supplementation of the medium with DHA alone resulted in increased levels of DHA but concomitant low levels of AA. However, supplementation with both DHA and AA yielded a fatty acid profile resembling that of neural tissue. It also resulted in enhanced outgrowth of neurite-like processes, hallmarks of neuronal differentiation. These findings demonstrate the essentiality of DHA and AA supplementation in the process of induced neuronal differentiation and have important implications for the development of cell replacement strategies of neural repair.

PMID:17185746[PubMed - indexed for MEDLINE]

Some mothers feel their children's autism did not fully express itself until after they quit breast feeding
I wouldn't be here today, with these outlandish thoughts, but for a woman who is doing  quite an interesting series on autism and evolutionary psychiatry in a  Psychology Today blog.  Her name is Dr. Emily Deans. This is her blog

Thursday, April 21, 2011

G.K. Chesterton on the Tyranny of Science

G.K. Chesterton on the Tyranny of Science

Eugenics and Other Evils, by G.K. Chesterton (Cassell : 1922), p.76-77.
The thing that really is trying to tyrannise through government is Science. The thing that really does use the secular arm is Science. And the creed that really is levying tithes and capturing schools, the creed that really is enforced by fine and imprisonment, the creed that really is proclaimed not in sermons but in statutes, and spread not by pilgrims but by policemen — that creed is the great but disputed system of thought which began with Evolution and has ended in Eugenics. Materialism is really our established Church; for the Government will really help it to persecute its heretics. Vaccination, in its hundred years of experiment, has been disputed almost as much as baptism in its approximate two thousand. But it seems quite natural to our politicians to enforce vaccination; and it would seem to them madness to enforce baptism.
Who would guess the high priest of paradox had an opinion almost 100 years ago on vaccinations?  Science believes it holds all that is pure and good and holy.  It has made a religion of itself. Navel gazing has led to it's inability to see that it holds few answers, and receives fewer accolades among the common man.  It can tell you what doesn't work, but not what does. It is like a brilliant child who cannot feed himself...his brilliance is for naught. It dies without being fed by the illusion of superiority.  Like the shamans of old, it's power comes purely from perception.  Like medicine before the discovery of germs...it will look back upon these days as days of ignorance, but in this day, "we are brilliant!"
It is a petulant child who refuses to say, "I don't know."
 True Science--click to see cartoon.

Tuesday, April 19, 2011

When WON'T a nypical look you in the eye?

Just got done reading Be Different by John Elder Robison.  Interesting stuff.  Although I needed to listen to Dr. Temple Grandin in the beginning, to have faith that just because you're different doesn't make you worthless...Robison's book tells me just because you're different doesn't mean you can't outsmart your detractors.  He found a way to succeed because of his differences, not in spite of them.

Anyhow, I read the book, and I like the word "nypicals" because it is amusing.  Kinda deragotory in a way...like "don't take yourselves so seriously", just because you can see the splinter in someone else eye, and not the log in your own.  Nypicals tend to be hypocrites, but cannot see it. They are blind to their own disabilities.

Something about this book helped me see the hypocrisy in nypicals.  I started observing them in the same way I used to feel observed by them.  And you know what?  They really are amusing.  They take themselves SO SERIOUSLY, all the while attempting to be Aspergerian-lite. An Aspergerian-lite is anyone who sees themselves as an authority on anything. Then they go all Sheldon (ala Big Bang) on you, like YOU are the idiot.  Good stuff.

So, when will a nypical not stare at your eyeballs? 

When they are pissed.  When they want you to disappear from their world.  When you don't exist to them.  The same reason our kids use.  They find us odious manipulators.  Nypicals find us odious people not able to be manipulated.  Makes you want to make SURE you make eye contact with them, for once.  Tit for tat.

Aint life grand?

Wednesday, April 13, 2011

A Picture Is Worth a Thousand Words.

Last Saturday, Ben and his Daddy moved a steam engine off a truck and onto the rails.  Ben's Daddy is taking the pictures, Ben is wearing the blue hard-hat..  I always kinda wondered, but in Ben's teen years, his father has become the greatest Dad in the world!  He "gets" Ben.  He didn' take Ben hunting, he wasn't a scout leader (for long), isn't rich enough to buy a railroad, but he knows what this young man needs.  He needs someone to believe in him.

Love is a verb, not a feeling.  Feelings are easy, love is hard. Kinda like moving a steam engine. But very rewarding...

Monday, April 04, 2011

A day with Ben

A day with Ben:

My son is my friend. I don't have to go about changing him. He's, well, he's very funny in my eyes. I'm about half-blind, though.

We go out for pizza. The table has butcher paper and crayons. Ben draws out some emoticons he's become familiar with. I crack up. The bartender thinks I'm drunk. I'm not...yet...She makes a damn fine margarita, though, strait up on the rocks.




-- pissed


--G.D. It! (look from right to left)


--Angry nerd (R to L again)


---Oh dear God! (R to L)

We are easily amused. It's a gift, I guess.

Somebody you let down your guard enough to laugh with, becomes your friend forever. Why is that?

I'm tired

I get tired of thinking all autism all the time.  I'm weary of trying to wrap my mind around all things autistic and trying to understand.  I've heard the "unexamined life is not worth living.", but all this belly-gazing is making me tired.

For some, it is just a different way of thinking.  For others, it is a profound impairment.  For my son, I think it is a learning disability.  My teaching background bears witness to that. Man alive does that kid learn differently.  It's fun to come up with something that works. He wasn't school material...as bright as he is.  But a part of me doesn't want to think of him as autisitc.  I want to think of him as Ben.

I gave it the good fight, did everything within my energy and means to help Ben..  Now, I'm just coasting.  Like every parent,  I hope for the best for my son.  I worry he'll get into trouble and have to pay a cost, like jail.  I worry he won't find friends to make life worth living.  I worry he will find friends and be as wild as his mama.  I worry he won't be able to make a living and have to spend the rest of his life living with his parents.  I worry he WILL, and he'll move out, and I won't be able to protect him anymore.

He is very sweet overall, but he's a little hot-headed.  I worry he's too sweet, I worry he's too hot headed.

When Ben first came home, I worried he would die...really...what's that thing...Sudden Infant Death Syndrome.  I worried he would quit breathing and I wouldn't be there to shake him into conciousness.  I had to give him to the angels so I could sleep.

I worry I'm too neurotic, and he'll suffer as an adult and live in the psychiatrists office. I worry I'm too lax, and didn't give him the right stuff and he'll grow up and be cruel and viscious.  I worry I gave him too much of the catholic sense of guilt, and he'll not take chances, or allow others to walk all over him. I worry he'll be poor.  I don't worry if he'll be rich...it's damn nice not to have to worry where you're next meal is going to come from.

Well, anyhow...I'm tired.

Sunday, April 03, 2011

autisitic speaks: Paging Dr. codeman38

Dr. codeman38, autism expert.  Enuf said.

Saturday, April 02, 2011

Autism Understanding and AcceptanceOpen Letter to the World

Autism Understanding and AcceptanceOpen Letter to the World

We (The Autism Community) need for you to know what Autism is.

We can only achieve that through Autism Understanding and Acceptance.

Awareness of autism has risen dramatically in the past few years, and awareness is certainly a good place to start. Increased awareness has helped parents get earlier diagnoses for their children, and it has helped secure funding for research. However, it hasn’t done much to change public perception of what autism really is.

This is a call out to the world to understand the people and the disorder.

This is a call out to the world to accept the people and the disorder.

You can not understand or accept the people until you understand and accept the Autism they have.

Autism is a part of who they are.

The media has focused almost entirely on children with autism – but children grow up. In a society where one in 110 children is diagnosed with autism (the latest figures from the Centers for Disease Control), no one can afford to ignore the significance of this disability. People with autism are children, teenagers, adults, men, women, scientists, programmers, engineers, unemployed, in care homes … too many of them continue to be bullied, to be judged, or to just be ignored.

Each person is unique. Each person has their own unique set of strengths and weaknesses just like you or I.

The charities, the organizations, the groups, the parents, the people with Autism themselves... we ask you... no, we need you to know what Autism really is.

Today, we ask for your Autism Understanding and Acceptance.

This is what Autism is to me...
Autism was a horrible label that made me lose faith in my child.  Now, autism is a group of wonderful, brilliant people whose hearts go out to those who are having a bit of a tough time in life, like they are. Autism is a right-brained way of looking at the world, where thoughts/perceptions preceed language, and where over-bearing sensory stimulation, lack of understanding,  and emotional liability can make finding one's way a constant battle. Autism is also a way of being that sensitizes one to the world so profoundly that it can feel unbearable to live. Autism is a way of being very, very human, even if you feel like an anthropologist from Mars.
The greatest gift autism gives a person is empathy.  Figure that one out!  You will never believe it, unless you look at things differently!!! 

Thursday, March 24, 2011

A great write-up on Synthenesia on Daily Kos

You know that autism speaks to creativity, as do many "brain diseases" such as schizphrenia, ADHD, Bipolar...one wonders if any "creative ones" appear in the neurotypical world. 

I go to Daily Kos daily.  It's a liberal blog here in America.  More even than loving it for the news you don't always get on the boob-tube, I've come to love the writers there.  I think it has a readership of a million people a day, but anyone can create a diary, once they sign up and go through the one week waiting period, which stops a lot of drive by trolls from taking shots at the "moran libs".

rhubarb created a diary there that some might find of interest. It is very well researched and there is lots of linky-goodness to other sites, for more info.

I was well into my thirties before I figured out that most people did not see a color associated with every letter and number, did not see shapes associated with sounds, and didn't view a year as a big hamster wheel with a rung for every day. Before you counsel me to take my meds, there's more to say about this phenomenon, known as "synethesia." As with left handers, you might think we synesthetes are a little mixed up, but we are in fine company! There is a long list of famous synesthetes, from Richard Feynman to Wassily Kandinsky.

The following is from the Library of Congress presentation by Doctors Richard E Cytoic.

I give credit to rhubarb for this link:


There is a test there he wrote about that takes about 40 minutes, to figure out if you have one of the more common types of sensory pairings, although there are at least 150 documented.

Thanks for reading, Rose

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